National Epilepsy Awareness Month Event:
Dinner with the Doctor
November 26th, 2013
Dinner will begin at 6:00 pm. with a presentation at 6:30 p.m. This is event is free, but registration is required. To register, please RSVP online at www.epiny.org or call (315) 477-9777, extension 0. Please leave a message in the general mailbox.
Dr. Tovar Spinoza, Pediatric Neurosurgeon at SUNY Upstate Medical Center, will present her success of using laser technology to eradicate tumors. A patient who has been through the surgery will also be attending to share their experiences. This is a great opportunity to get educated in this new treatment that may help you, or someone you know, with Epilepsy.
Sign up to support legislation in the New York State Legislature that seeks to regulate "First Fail" or "Step Therapy" drug policies imposed by health insurance companies. These can be especially detrimental to people with epilepsy. Download the petition or contact your local elected official. Find out how to contact and locate your local elected official here.
Our new website, www.epiny.org, will be rolled out November 2013. Check back periodically for updates!
SAVE THE DATE
Chocolate Ball 2014
The theme for the upcoming Chocolate Ball will be "Cirque de Chocolat" and will take place on February 8th, 2014. This will be a carnival of color, acrobatics, and - of course - chocolate.
CAMP EAGR 2014, AUGUST 10-16
Mark your calendars with next year's Camp EAGR dates! The camp will be held August 10th-16, 2014. We hope to see you there!
Contact Mike Radell, Camp Director, for more information: (585) 442-4430 x2741
The Epilepsy Foundation of Rochester-Syracuse-Binghamton mission is to stop seizures and SUDEP, find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.
Our vision is to remove stigma, be first-in-mind for innovative programs, provide fast response and high-quality services for people with epilepsy and related disabilities so they may reach their potential.
We serve individuals and families without regard to race, color, sex, age, or national origin. Our funds are provided by NYS Office for People with Developmental Disabilities (OPWDD), Department of Health (DOH), Adult Career and Continuing Education Services - Vocational Rehabilitation (ACCES-VR), Epilepsy Coalition of New York State, Inc.,
If you have questions and would like to talk to someone local, give us a call at (800) 724-7930 and talk to one of our Community Educators.
Below are links to some great resources about epilepsy and seizures on the National Epilepsy Foundation's website.